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Anyone have pain after BCG Treatments, especially with urination?
Bladder Cancer | Last Active: Sep 25 7:10am | Replies (60)Comment receiving replies
I have had several rounds of BCG. It left me pretty tired, but I could deal with that. What was difficult was the radiating pain that went in my chest and down my arms when urinating. Now I’m in a trial, 0007 Bond. The radiating pain continued. Luckily it wasn’t every time I urinated. None of the doctors seem to know why. One of them said they thought it was connected to fibromyalgia. My body overreacting to the bladder spasms. The treatments have caused me to be incontinent. Last week I had my first injections of Botox in my bladder. Hallelujah the pain urgency and leaking has stopped.
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I’m so sorry, I too had the pain that radiated upwards through my whole body. Every time I would urinate which was ever 15 minutes it started on my fifth treatment was severe on the sixth treatment, thank God it was my last treatment I personally would not have been able to continue because the pain was that severe. My urologist was not sure what it was stated I could be having a reaction to the BCG treatment. All I know is there is no way I can do the treatment again not that type of pain praise God my three months cystoscope came back clear I go back in October for a repeat. I am praying for it to be clear as I said I do not believe I could do the treatment again not with that type of pain so I do understand and my prayers are with you.