You are definitely at the right place. You didn’t mention the PSMA PET scan earlier, but it’s great to hear they’re doing it.
You really have to wait to see what they find with the pet scan.
One thing you didn’t mention is his Gleason score. That is a critical piece of information that tells us more about what treatments will work and how long they will work.
While it does sound like the rising PSA is a major problem. You have to realize that treatment these days can handle what you are seeing quite easily. This isn’t time to panic. There are so many treatments and you are just beginning what could be a very long progression Free survival. I know many people that have had very serious cases Of prostate cancer and are still around 10, 20 and even 30 years later. There are a lot of options, And medicine is coming out with new treatments pretty regularly.
Hopefully Nubeqa won’t cause any problems, it is much easier on the system than Erleada. I’ve been on it for 2 years now And after 15 years of prostate cancer and four reoccurrences, it has kept me undetectable for the last 22 months. I’ve noticed no side effects from it and I know a lot of other people on it, many of them in their 80s, and it works very well for almost everyone.
After the pet scan, they may decide to do salvage radiation, or they may decide that there are noticeable metastasis that they can zap with SBRT radiation. Doctors at recent conferences have said that they just wait for people new tumors to show up and zap them, and that lasts for a long time.
Yes we chose UCLA after researching the best places on the west coast. Our doctors all seem to be on board with the latest treatments and they are all involved in clinical trials, teaching, etc. Everything changed when we were passed along to UCLA from our local urologist.
We know it’s aggressive and so do they. Gleason 9 with cribiform. That is one reason we chose to have surgery first and follow with radiation etc. I have a suspicion they waited on starting ADT because they wanted a better chance of seeing things on the PSMA PET. But obviously at this point they are saying starting the ADT will be beneficial. And they have mentioned just radiating individual spots as they show up.