Hello @denisepierce and welcome to Connect. I am glad that you found this forum. NETs are a rare form of cancer, and it helps to meet with others who are travelling down the same road. I came to Connect before my third surgery for NETs in the upper digestive tract. I had no symptoms to indicate that there were any problems; it simply showed up in an upper endoscopy.

Share, as you would like, a bit about your journey with NETs. How long ago were you diagnosed? Was your large cell neuroendocrine carcinoma located in the digestive tract?

I look forward to hearing from you again.