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Has anyone had NET show up on CT scan, I had CT scan in 23
Neuroendocrine Tumors (NETs) | Last Active: Oct 5 6:53am | Replies (27)Comment receiving replies
I had a pet scan that showed 20 small nodules, 10 on each lung. Had a biopsia. NETS were confirmed. Grade 1. Only 1% rate of proliferation. This was 2 years ago. Oncologist say just to control and wait. No other treatment. Not too many symtoms except some dry cough and fatigue. I am now 82 years old. I guess there is nothing else I can do except to wait. Other recent scan do not show growth. I was thinking that I will probably die of something else at this age. Any comments?
Replies to "I had a pet scan that showed 20 small nodules, 10 on each lung. Had a..."
Oh interesting to hear you have a good few and all is ok. I just had the one and found initially by CT. Confirmed by a biopsy. I’m 64 and have lots of things I still want to do!! So thanks for being my inspiration!
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“Just to control and wait”
While this is typical advice given, it also is a gamble especially with NET’s.
1. “Control” - how??
2. My wife had similar advice and after 3 years the tumors had spread to multiple sites.
3. I am not a medical trained individual but you could consider researching if monthly injections may be another option for control. I do understand this has to be approved by your medical team, insurance, etc … given the nastiness of NET’s all options need to be explored.
4. Have you considered a second opinion for a review of your situation?
All the best to you -
Mark