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Biopsy showed DIPNECH

Neuroendocrine Tumors (NETs) | Last Active: Sep 23 10:46am | Replies (17)

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Many thanks to each of you for weighing in. I live on the east coast, about a 3 hours drive to Duke. My pulmonologist wants me to see the team at Duke so that they can manage my care. As I received the biopsy at a hospital a bit closer to home, I'm meeting with an oncologist in the coming week (referred to me by the Dr who ordered the biopsy at the same facility). I'm anxious to learn more. The same pulmonologist who referred me to this oncologist wrote in his notes that they may also need to consider a dotate scan. I have severe obstructive lung disease. I've been taking a really high dose of Gabapentin & Lyrica, which has provided some relief. But I'm looking forward to the day when I have more improvement.

@tammyv615 can you tell me more about the infusion? I can't find much info on it, even when I use chatGPT.

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Replies to "Many thanks to each of you for weighing in. I live on the east coast, about..."

@kdubbs

Here is some information about the Dotate Scan that you mentioned,
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/
Keep posting with any questions!