Pleomorphic xanthoastrocytoma tumor (Pxa): help

Posted by lmp1 @lmp1, Jun 27, 2017

My daughter was diagnosed with a Pleomorphic xanthoastrocytoma tumor in February. She had surgery to remove it. They thought they got it all but wasn't sure. She is 25 years old and has a 4 year old and a 1 year old. Her last app and MRI was June 21 and it seems that it is growing back. I know this a rare tumor and I'm having a hard time finding info. Any help someone has would be appreciated. Would love to hear from other survivors of this rare tumor. Thanks,
A very worried mom!

Interested in more discussions like this? Go to the Brain Tumor Support Group.

sampowerful1 | @sampowerful1 | Dec 7, 2023

@colleenyoung Have you seen newer discussions on PXAs?

Colleen Young, Connect Director | @colleenyoung | Dec 9, 2023

In reply to @sampowerful1 "@colleenyoung Have you seen newer discussions on PXAs?" + (show)

Hi Sam, this is the main discussion about pleomorphic xanthoastrocytoma (Pxa) tumors. I that earlier this year that @julcou55002 they were diagnosed with "mixed glioneuronal tumor with cross features of a pilocytic astrocytoma, ganglioglioma, and pleomorphic xanthoastrocytoma."

Hopefully you can connect with each other here.

How are you doing, @sampowerful1? Radiation treatment completed?

sampowerful1 | @sampowerful1 | Sep 13 12:54pm

In reply to @colleenyoung "Hi Sam, this is the main discussion about pleomorphic xanthoastrocytoma (Pxa) tumors. I that earlier this..." + (show)

Everything was fine with the first surgery and first round of treatment. Now, I have a recurrence 2 years later (still only the size of a pea) and I’m currently looking for a new care team as I think my current one isn’t doing a good job.