I am exactly in the same boat. A couple months ago the lab I go to starting sending test results to me as well as the doctor. That was when I first saw my EGFR and I went into panic mode. Scared the heck out of me. When I went to the doctor, most of the time I would see a nurse practitioner every three months and the doctor every six months. When I would go to my appointments we'd go over the lab results and the doctor and nurse practitioner would go over creatinine, potassium, phosphorus, etc. All the things that contribute to the EGFR count but never talked about or even saw my EGFR. Everything was excellent and within normal range. My last stage was 3 so I thought I was still at 3. In actuality, I am well into stage 4 and very close to needing a transplant or go on dialysis. I may be remiss in not specifically asking about it but when everything was was in the normal range I didn't think to ask. The only time there was a serious problem was after I had COVID, my blood test apparently went haywire and my doctor said it indicated that I have Leukemia. I had another blood test two weeks later and it hadn't changed. He sent me to an oncologist, two lab tests later everything went back to normal. The doctor did not agree with me but I thought the blood tests got screwed up because of COVID. At any rate I wonder that when the doctor said it all went back to normal he meant that it no longer pointed to Leukemia but that my stage changed from 3 to 4 at that time. At this point, it would be guessing and nothing concrete. I also had to change doctors at that time and with the new practice I saw a different nurse practitioner at just about every appointment. I'm sorry, I did not mean to tell you my life story but what I have learned from all this is that I cannot trust the doctors or nurses to keep me informed of every step of my disease. That I need to stay on top of all my lab results and learn to ask questions. In conclusion, the thing that makes me angry is the lack of information when I first learned I had CKD. The way I found out I had CKD was my doctor's office clerk calling me to tell me I needed to make an appointment with a Nephrologist. In my ignorance I had no idea what type of doctor a that was. I asked the clerk why I was being sent to a Nephrologist and her response was, I don't know. I asked to speak to my doctor and was told she was not in the office. I looked up Nephrologist on the web and read the good news. Anything I have learned about CKD was on the web. The first Nephrologist I saw gave me a general idea of what it was, what to expect. And a hand out on what foods to eat and what to avoid. That was it. I read as much information as I could on the web. From my research I found that I had a lot of questions that I should have written down for when I had an appointment, instead I thought I would remember to ask the doctor. What actually happened is that my mind went blank trying to understand what she was telling me at the time. I have had about 5 different doctors both male and female. There was no discernible difference from one office to another. The doctors always seemed in a hurry if I started asking questions they had one hand on the door ready to exit. Not every doctor behaved like that but most did. As Hippocrates said, "if you are not your own doctor, you are a fool". I don't think I would go that far but I think that we need to depend on ourselves for the things we need to know. Some through research and going to classes that most towns/cities have for learning about CKD.