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Small Intestine Bacteria Overgrowth (SIBO)
Digestive Health | Last Active: Mar 21 4:02pm | Replies (466)Comment receiving replies
I agree! It really takes a toll on your overall health and from what I gather, there isn't a long term treatment available. I have Gastroparesis so I understand the low motility. I also have to take something to keep me going as well as do a Miralax clean out every couple months. It's not fun but when I went to Mayo last summer, I hadn't had a BM in over 29 days. It was awful. It's a tiny better now but because of the motility issues, the bacteria thrive. It's not easy to keep it under control even while doing everything recommended. It'd be wonderful if there was a magic pill but I think it's going to be a lot of trial and error as well as acceptance. I'm glad the Pepto is helping! I haven't found anything yet... It took over a decade to finally get a diagnosis and put a name to what I had. Now just more and more seems to go wrong lately. It's very frustrating....
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Facebook has so many different herbal remedies that can work. I was just diagnosed and put on amoxcicilin and so far after 3 doses, I'm still miserable. I see my GI PA next week and hope he can put me on xifaxan. They said my insurance likely won't cover, but didn't even try. I'm so so miserable and will probably see a naturopath for further help. Everytime I eat and drink my abdomen is lump, ropey, pins and needles, burning, numbing, back back hurts, pressure under ribs, intestinal spasms, my legs feel the same and I think its malobsorption and pressure on nerves. I'm so disappointed that in 2021 this is a hard thing to cure. I'm praying you get answers. Keep searching.
Aimee