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Small Intestine Bacteria Overgrowth (SIBO)

Digestive Health | Last Active: 5 hours ago | Replies (478)

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@tykehome

I am struggling with Methane SIBO and Gastroparesis for a couple years now. I was on Xifaxin last year and it worked quite well and had to take it again and the results didn't last as long and the symptoms returned. I had to transfer my care locally as it's costly for me to travel to Mayo. I was then prescribed by my local GI doctor, the Antibiotic Neomycin in combination with Flagyl. I was on a daily dose of 6000mg Neomycin and 1500mg Flagyl. It didn't help and was wondering if anyone has been prescribed Neomycin and at what dose? I ask because I suffered hearing loss and nerve damage from being on a high dose for over 10 days. I also developed an insanely loud noise in my ears called Tinnitus. I was told I have Neurotoxicity. No one can help that from what I've been told. I was in the ER 2x from complications and have seen maybe 6 specialists. Has anyone ever tried Neomycin or anyone have knowledge on dosage? I called my Mayo Doctor and he said they don't even use Neomycin. The other doctors I saw were shocked by the dosage and everyone referred me to Mayo for help but Mayo has told me they can't help further and I have to "live" with it. I'm desperate for anyone who can help! Thank you.

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Replies to "I am struggling with Methane SIBO and Gastroparesis for a couple years now. I was on..."

I'm so sorry, I've read about them using Neomycin my dr only gave me xifaxan which I'm on for 2 weeks. This condition is so horrible and mentally draining. I joined a SIBO group on fb they have awesome info. I'm also eating a loaded map diet. I hope you find some relief.

My gastroenterologist thought I had SIBO.
If I remember correctly.. years ago... she took a biopsy:

Took an antibiotic: OK, then
symptoms continued with itchy skin(dermatitis herpetiformis).

Follow up much later at the only out patient hospital that did breath testing for celiac disease.
I cannot eat wheat!

You should definitely go see a “naturopathic doctor” find a good one in your area!! Or a “Holistic doctor.” Yes herbs/functional medicine, has side effects but not like these antibiotics that kill your GI system. I am currently waiting on my first test to come back then I start my herbal treatment, it takes longer but no harsh side affects. Consult your doctor first and make sure you’re not taking both herbal and prescription medication as they can cause more damage.