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Yep! 12 years ago in a top NYC hospital, had L4-L5 fusion but had to go so S1 to affix the hardware. I knew something was wrong right away. Couldn’t lift my right leg off the table. Pain was terrible. Ended up in hospital for 3 weeks and the only thing that got me up and walking was an excellent rehab unit. Has progressively worsened and finally, years later, was correctly diagnosed by a neurologist as severe neuropathy caused by permanent nerve damage and possibly a failed fusion. Because wasn't addressed right away scar tissue formed and compressed several spinal nerves. Told they can’t free these nerves because of the scarring. I fall, walk with a walker and use a medical scooter to go any distance. Been on morphine, opioids, had a spinal cord stimulator and many epidurals with little help. Now I’ve been told I need a repeat fusion but with no guarantee, and no one actually willing to do it anyway. Fortunately I am retired and have a wonderful husband and family. One thing I’ve learned is I have to keep my mind active. Give talks, active in many groups, and keep busy with reading, music, art etc. Distraction helps! Won’t let this keep me down. Just started the process of seeking help at Mayo Clinic on the chance that there’s something new they might offer. But no more major surgery for me!!

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Replies to "Yep! 12 years ago in a top NYC hospital, had L4-L5 fusion but had to go..."

This journey that started had me believing that this was going to take care of my pain. My neurosurgeon told me I waited too late to come in. It only took me that long because I was able to move and work and get things done. Until I wasn’t. I couldn’t lift my right leg and my toes were all numb. My husband had to carry me. I try my best to stay busy because if I sit too long my back locks up. I have been told that my nerve damage is permanent. I don’t believe that. I stay active no matter how painful it is. I have to keep moving. I have been on so many different meds and at this present time I only take cyclobenzaprine. They do help a little bit. When I get a muscle spasm when I’m laying down I immediately get up and stand on my feet before it gets too bad. Some Tim’s I can’t get up fast enough. That pain right there is unbearable for me. Put it this way I would give birth to all 3 of my kids with no medication rather than deal with muscle spasms!