← Return to Biopsy showed DIPNECH
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Neuroendocrine Tumors (NETs) | Last Active: Sep 23 10:46am | Replies (17)
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Replies to "Hi , welcome to the DIPNECH club 🥴. You’ve come to the right place! I also..."
Hi , I have the exact same diagnosis and situation as you do. I have tumorlets scattered throughout my lung. Was diagnosed with typical carcinoid net 9 years ago. 2 years ago I had part of my right lobe removed. I have scans once a year and thankfully no treatment. I can walk for 10 Miles straight but 1 flight of stairs and I am totally out of breath. They told me these are very slow growing tumors. I am 73 and I hope and pray for the best . They told me old age would get me before this. I hope they are right. Occasionally I do cough , but I c a live with that. Wishing you well
I also get a CT scan every 6 months.