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I am afraid the pain will never end.
Polymyalgia Rheumatica (PMR) | Last Active: Sep 12 1:49pm | Replies (71)Comment receiving replies
Ropnrose, I agree with everything you said.
Havana, I will add I had no pain at all until I went under 9mg.
My rheumatologist only offered Kevzara to help the prednisone reduction and I won't take that. (I have diverticulosis, which is not as bad as diverticulitis but I don't want to take any chances.)
Ropnrose, do you have GCA? Someone mentioned that is only given for GCA not for PMR alone. I'd actually be happy to try that as it has been a struggle getting down to 6.5. Not anxious for the next reduction!!!! But want off!!!
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In July 2024, I was diagnosed with PMR and suspected GCA. I had bilateral temporal biopisies done, but they were negative. The report stated that, that didn't necessarily mean I didn't have GCA. I had all the symptoms (except vision issues). I was started on 60 mg. pred. at that time. When my taper got me to 8 mg. in December, I had a flare. My PMR and GCA symptoms returned. That's when I told my rheumatologist that I wanted to try Actemra infusions. She agreed with me.