Triple positive breast cancer
I hear a lot about hormone positive BC but not a lot about Triple positive breast cancer. Does anyone in this group have triple positive breast cancer that can give me insights on the cancer itself? I didn’t have compete response to my treatment of TH.
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Hi! I also had triple positive(initial diagnosis). I completed the 10 rounds of the “standard of care” treatment of THCP. Then had a post treatment MRI that discovered a 2nd tumor (HER2 and estrogen positive but progesterone negative, same breast but different spot.
Official diagnosis:
Invasive ductal carcinoma of the left breast, int grade, T2N0M0, ER positive (8/8), PR+ (5/8), Her2 Positive (2+, amplified by FISH)
Separate tiny focus of ductal carcinoma in the left medial breast, T1aN0M0 ER (8/8+), PR negative, Her2 1+
I chose a bilater Mastectomy. In addition to both breast they took 1 node. The node came back clean but I still had residual. Since my decision was at the 11th hour I had to defer starting reconstruction.
I immediately started Kadcyla (my husband calls it chemo lite). As I have not had any issues while taking it. Hair is growing back nice and full, taste buds are back to normal and my strength is building every day!!!
I am also on Anastrozole for 5 years. I did start taking gabapentin for joint pain and that was the winning drug for me!!!
Cancer is not a death sentence!! Stay positive and keep your body healthy. Do what is right for YOU! We will all have a different experience. I found it helpful to not read a lot into what Dr Google had to say. You can find way too much negativity.
I am a 62 year old female… started round two in November 2024. Just got my expanders a month ago and I am living life!!!
Schedule to participate in the Susan G Komen 3 day (20 mile/day) walk in August.
Be strong and know you can do those things you want and need to do!!! Tits up
Thank you for your response. Your treatment is THCP even without lymph nodes. I didn’t have lymph nodes but was only given TH. Sometimes I wonder if I was under treated.
Correct. I was told it was the “standard of care”. I attempted to get into the Flamingo trial but since my 2nd tumor was not triple positive I was not accepted. It might be worth looking into to.
How is everything for you?
Thank you for your inspiring story. I am 52 this year and have 3 kids. I try my best to think and stay positive yet sometimes I can’t bear the thought of not being able to see them grow and my heart just feels heavy. I will take your advise and take one day at a time. 🥰
@cjs123172
I have triple positive lobular cancer. Did you have radiation as part of your therapy
@crspedsrn
Yes. I had 21 radiation treatments after chemo.
@crspedsrn
No. I only had chemo. I also had a double mastectomy.
I had only a lumpectomy because of my age I’m 84 surgeon was concerned about anesthetic I’m in chemo now hopefully it will be a good outlook
@kedisaacs thanks. I pray nightly that mine has been cleared and that Jesus has protected me from this disease. 🙏🏻❤️