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I was diagnosed with LCIS after having an elective breast reduction in 2/2024. They tested the tissue and found LCIS. I have been on a 6 month imaging schedule and started taking tamoxifen (10mg) at the end of March this year. The LCIS has not been pleomorphic, but I have had 1 ultrasound biopsy and 2 (at once) MRI biopsy. My next imaging is February of 2026. At my last appointment/consult, the doctor very strongly suggested a mastectomy. I am not ready to make that decision at this point, I am going to wait until after the scans in February, and pray for no growth or new areas. If that is not the case, I'm not sure how I feel about the mastectomy. I am about to be 49 years old, and really am not sure what the right choices are.
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My LCIS was found on the left side about 7 years ago. I was almost 2 decades post menopausal and had numerous negative biopsies since my 30s.Opted to not take tamoxifen due to familial high platelets. I have been on a six month alternating MRI with 3D mammos. Highly skilled radiologist found 5mm ILC in right breast following mammogram 6/25.surgery 7/25.Markers and past genetic testing all good, clear margins, and now undergoing 15 radiation treatment & Anastrozole (no noticeable side effects). Was given a choice of mastectomy, but opted for this treatment plan for Stage 1,More manageable side effects for me as a 77 year old living alone. It’s such an individual choice with all your history, genetics, and your hormone,HER2 markers.Got my Oncotype DX of 7 just this week.I have 2 daughters in their mid 40s and hopefully all this will help guide them,if needed, in future. I wish the best and most info possible in your decisions and treatment.