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Small Intestine Bacteria Overgrowth (SIBO)
Digestive Health | Last Active: Mar 21 4:02pm | Replies (466)Comment receiving replies
I'm so glad I came back here.. I'm so anxious to talk to others with SIBO diagnosis! First off, what is BAM, and NET?
Which Dr. did you see at Mayo? I was diagnosed with SIBO at Mayo by the Dr. who did my endoscopy (via the duodenal aspirate), which is considered 'gold standard'. Sadly the Dr, who is a fellow; who was assigned to my care doesn't seem to believe in it, and when I asked to do the treatment protocol for it, he got all huffy; so I'm now without a GI doc, have gotten a local friend to write prescription for me to treat myself best I can based on the literature. I asked the GI dept if they had a doc that was familiar with SIBO, and never got an answer. I'd like to see one if they exist since I've had all my testing there. Otherwise I'm looking into Johns Hopkins, the only SIBO center I can find that takes out of state patients.
Do you have Carcinoid tumors also?
How did the Levaquin work (i'm assuming maybe you finished that now). I haven't taken that one! Look forward to hearing from you!
Replies to "I'm so glad I came back here.. I'm so anxious to talk to others with SIBO..."
BAM-bile acid malabsorption NET- neuroendocrine tumor. I saw Dr. Yi Qin primarily. She was great! Easy to talk to and would get back with me within hours if I had a question. I also saw Dr. John Kisiel. Didn’t spend as much time with him but he was very attentive and easy to talk to. Thankfully they were able to rule out NET/Carcinoid Syndrome. I didn’t find out which doc I was going to see until the afternoon before my appointment. I was blessed. I have seen some very minor improvements since finishing antibiotics. Sorry it took me so long to reply
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I've had surgery for obstructions. In the last surgery they took out illeocecal valve, appendix and a piece of large and small intestines. I was then introduced to SIBO. Two flare ups in the last year
The only treatment that worked was XAFLAXIN and flagl together
Local GI doc prescripted colestapol which did nothing
I started out with damaged GI system from BAND and subsequent RNY bypass. Hope this helps