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Small Intestine Bacteria Overgrowth (SIBO)
Digestive Health | Last Active: Mar 21 4:02pm | Replies (466)Comment receiving replies
I was diagnosed with SIBO yesterday. Now I get the pleasure of doing the test for BAM. Luckily I get to do this one at home. I feel vindicated and hopeful. I have suffered with SIBO for close to 10 years. When I went to Mayo it was for like a 7th opinion. I was told at home I have a NET and carcinoid syndrome and to think about palliative care. The doctors at Mayo,yea Dr. Qin, were phenomenal. I now have answers. Levaquin for a while and after the BAM test I'll start the SIBO diet. To find the diet ,Google Mayo SIBO diet. I wish you each the best quality of life. Something I thought was gone but now have hope for. Thank you Mayo Clinic Rochester!!!!!!!!!!!!
Replies to "I was diagnosed with SIBO yesterday. Now I get the pleasure of doing the test for..."
Did you actually have a neuroendocrine tumor or carcinoid syndrome??im suspecting that too? What tests did they do
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I'm so glad I came back here.. I'm so anxious to talk to others with SIBO diagnosis! First off, what is BAM, and NET?
Which Dr. did you see at Mayo? I was diagnosed with SIBO at Mayo by the Dr. who did my endoscopy (via the duodenal aspirate), which is considered 'gold standard'. Sadly the Dr, who is a fellow; who was assigned to my care doesn't seem to believe in it, and when I asked to do the treatment protocol for it, he got all huffy; so I'm now without a GI doc, have gotten a local friend to write prescription for me to treat myself best I can based on the literature. I asked the GI dept if they had a doc that was familiar with SIBO, and never got an answer. I'd like to see one if they exist since I've had all my testing there. Otherwise I'm looking into Johns Hopkins, the only SIBO center I can find that takes out of state patients.
Do you have Carcinoid tumors also?
How did the Levaquin work (i'm assuming maybe you finished that now). I haven't taken that one! Look forward to hearing from you!