I have an appointment with a specialist who will count the areas affected by enthesitis.. I have counted myself and its 16!!!! 2 or more areas the NICE Guidelines state must be referred and treated. Its absolutely shocking. They have now tried to remove the costochondritis diagnosis from 2018 that links the sternum sclerosis..... I didnt want to take legal advice, as its not about money, but this has gone too far now....
Theyre closing ranks as my rhuematologist found multiple sites ofsclerosis and the NHS trust wont admit this fully. I swear if i get a chance at life again and togetsome quaity of life i am dedicating my life to helping others that may face similar situations