Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for jaimealvarezvanega @jaimealvarezvanega

Nerve Flex
Tiene merito?
Does it work for neuropathy?
Does it have merit

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Welcome @jaimealvarezvanega, I'm not sure if I know what Nerve Flex is. I didn't seen any supplements named Nerve Flex but I did see some information about nerve flossing which may also mean nerve flexing.

-- Nerve flossing exercises: https://www.medicalnewstoday.com/articles/nerve-flossing

Is this what your question was?

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Profile picture for scain @scain

I am relatively new to my neuropathy of my feet and ankles. I am writing this while my feet are soaking in magnesium flakes found in Amazon. Also today received my foot elevation cushion. By 4: 00 or 5:00 each nite my feet and ankles are swollen to ar least twice their normal size. I never even experienced this with pregnancies. But the swelling isn't the worst part, I feel like I am walking on footballs. There is simply no good place to land my soles. It hurts so much I am really very worried that I am headed for a wheel chair. Our home is not set up for that. The lyrica that I take for a different problem may help somewhat for my feet, but not really. I have a neurology appointment in a couple of weeks, but honestly she wasn't very helpful the last time u saw her. She prescribed p.t. that u haven't done. I don't get it...if doctors think exercise is the answer and I can't walk to the kitchen and back without my cane for balance and gingerly trying to find some place in the soles of my feet to land while walking, I am not sure what kind of exercising I can do. Does anyone feel as frustrated as I do thinking my doctors advice isn't practical. Would love to hear some of your opinions on this. Thanks

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I recommend getting several pair of Kemford ankle-compression, toeless socks on Amazon. I wear them all day and for some reason they have stopped my lower leg swelling. It may be the other stuff I take as noted prior, but the socks seem to help a lot. Keep on trying things. An experienced patient is better than a new doctor....

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Profile picture for scain @scain

This post interests me as I spent several hours yesterday going thru the extensive list of neurologists that is posted here on the link. I narrowed it down to just 2 who may have expertise in PN. I think that 99 per cent of them are located in Boston. Going to a doctor in Boston means parking up to several blocks away and walking to their office. If we as a group have difficulty walking in our homes, how are we expected to accomplish this. Some may also have offices in suburbs where a close up parking lot is available. That would mean the difference in seeing them. But back to the issue of most of us already have seen our local neurologists and think that a neurologist who specializes in PN may be more helpful is not what I am reading here is the answer. Did anyone get any more clarity on PN seeing a specialized doctor? I am always hopeful that a doctor out there has a better understanding than your basic neurologist who just wants to prescribe a pain pill and call it a day. Thanks

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I ended up seeing 4 different neurologists over a period of almost 10 years, and none of them ever offered me any kind of drugs. In fact, they didn't seem to be all that interested in trying to determine the cause of the pain and burning in my feet. If I hadn't been more determined and forceful to get to the cause of my condition with my 4th neurologist, he probably wouldn't have done any additional tests. It still took him over 3 years to run them and get the results, which didn't show any kind of causation.
I'm still very wary of neurologists due to the treatment that they did, and didn't provide. I ended up getting my gabapentin prescription from my GP because he saw how much pain I was in, and how it was affecting my life, as well as my family's.

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I'm doing FULL BODY MEDICAL GRADE FDA CLEARED INFRARED LIGHT sessions 4 x week for 15 min each time plus vibration plate therapy weekly. 3x week. THREE 3-minute sessions each time (per PUBMED study on VIBRATION PLATES for neuropathy pain).
https://pubmed.ncbi.nlm.nih.gov/32507132/
The red light therapy is starting to kick in...can take 6-8 weeks. So far I ONLY use the INFLAMMATION program. And I take COOL CAYENNE daily plus I started R-LIPOIC ACID supplements and Tart Cherry Extract for circulation.

I have many hours and often days now with no pain or pain in the low 1-3 range.
It can be very expensive but I am blessed to live near a LIGHTLOUNGE.LIFE facility in Boulder CO. A single 15 min session is about $90...but if you become a charter member (sign on for 3 month stint at $159/month you can have up to 20 sessions each month making the cost of each session around $8!

It's an ongoing membership that renews afte 3 months - and you can cancel with a 90 day notice. But I won't be cancelling. The modality IS helping and I have the side benefit of having my WHOLE BODY bathed in INFRA RED light - good for the skin and the firming facial skin too. And they're finding new things all the time..even evidence that IRL can trigger regeneration of or repair of damaged nerve endings!

I've only had 18 sessions so far but I feel confident to say that they have made my life a little less painful!

Here's some info about R-LIPOIC ACID (aka R-ALPHA LIPOIC ACID):

R-lipoic acid (RLA) is a powerful antioxidant that may offer a wide range of benefits, particularly for managing conditions related to blood sugar and oxidative stress
. As the biologically active component of alpha-lipoic acid (ALA), RLA is considered more effective than the common synthetic ALA found in most supplements.
Key potential benefits

Diabetes and nerve health: RLA is best known for its ability to manage diabetes-related complications.
Improves blood sugar: It can increase insulin sensitivity and help regulate blood glucose levels.
Treats nerve pain: RLA can help alleviate the pain, tingling, and numbness associated with diabetic peripheral neuropathy by improving nerve blood flow and conduction velocity.
Brain function: RLA is able to cross the blood-brain barrier, offering neuroprotective effects that benefit overall brain health.
Combats oxidative stress: It protects the brain from oxidative stress and can increase levels of beneficial neurotransmitters like dopamine and serotonin.
Neurodegenerative diseases: Studies show it may help slow cognitive decline in patients with Alzheimer's disease and shows promise for other neurological conditions.
Cardiovascular health: RLA may promote heart and blood vessel health.
Improves endothelial function: It supports the function of the blood vessel lining.
Lowers blood lipids: Research indicates that it can help reduce blood glucose and lipid levels.
Skin health: When applied topically, RLA offers multiple benefits for the skin.
Powerful antioxidant: Protects against oxidative damage that causes signs of aging.
Reduces inflammation: Its anti-inflammatory properties can help with skin conditions like rosacea.
Improves texture and appearance: It may improve overall skin texture and reduce the appearance of fine lines and wrinkles.
Weight management: RLA can assist with weight loss, particularly when combined with a healthy diet and exercise.
Increases metabolism: It boosts metabolism and increases insulin sensitivity, which aids in fat metabolism.
Antioxidant and anti-inflammatory: RLA is a powerful antioxidant that combats free radicals and can regenerate other important antioxidants in the body, such as vitamins C and E. It also reduces inflammation throughout the body.
Chelation therapy: RLA can bind to and help remove heavy metals from the body.

Potential side effects
While RLA is generally well-tolerated, some side effects may occur, especially at higher doses. These include:

Stomach upset, including heartburn, nausea, and diarrhea
Dizziness and headaches
Skin rash
Unusual urine smell
Hypoglycemia (low blood sugar), which is especially important for people with diabetes to monitor.

Note: The information provided is for educational purposes only and is not a substitute for professional medical advice. Always consult with a healthcare provider before starting any new supplement regimen.

I've only been taking it for about a week. So far no stomach upset or any of the other side effects.

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Has anyone been able to drive again?

REPLY
Profile picture for scain @scain

This post interests me as I spent several hours yesterday going thru the extensive list of neurologists that is posted here on the link. I narrowed it down to just 2 who may have expertise in PN. I think that 99 per cent of them are located in Boston. Going to a doctor in Boston means parking up to several blocks away and walking to their office. If we as a group have difficulty walking in our homes, how are we expected to accomplish this. Some may also have offices in suburbs where a close up parking lot is available. That would mean the difference in seeing them. But back to the issue of most of us already have seen our local neurologists and think that a neurologist who specializes in PN may be more helpful is not what I am reading here is the answer. Did anyone get any more clarity on PN seeing a specialized doctor? I am always hopeful that a doctor out there has a better understanding than your basic neurologist who just wants to prescribe a pain pill and call it a day. Thanks

Jump to this post

Having been out to Boston, you’ll be happy to hear all of hospital buildings have valet parking available. You might also check with your insurance provider, they may provide transportation for you. Just something to look into.

Good luck!
Bob

REPLY
Profile picture for mrmacabre @mrmacabre

I ended up seeing 4 different neurologists over a period of almost 10 years, and none of them ever offered me any kind of drugs. In fact, they didn't seem to be all that interested in trying to determine the cause of the pain and burning in my feet. If I hadn't been more determined and forceful to get to the cause of my condition with my 4th neurologist, he probably wouldn't have done any additional tests. It still took him over 3 years to run them and get the results, which didn't show any kind of causation.
I'm still very wary of neurologists due to the treatment that they did, and didn't provide. I ended up getting my gabapentin prescription from my GP because he saw how much pain I was in, and how it was affecting my life, as well as my family's.

Jump to this post

I started having numbness in toes 8/5/2024 I am diabetic went to ER and they would not help but the last thing said to me by the ER doc DO NOT GO TO A CHIROPRACTOR GO TO A NEUROLOGIST. Well guess what went to a chiropractor glad I did. NEUROLOGIST just try to stuff that poisonous Gabepentin down your throat

REPLY
Profile picture for mariegroh @mariegroh

I'm doing FULL BODY MEDICAL GRADE FDA CLEARED INFRARED LIGHT sessions 4 x week for 15 min each time plus vibration plate therapy weekly. 3x week. THREE 3-minute sessions each time (per PUBMED study on VIBRATION PLATES for neuropathy pain).
https://pubmed.ncbi.nlm.nih.gov/32507132/
The red light therapy is starting to kick in...can take 6-8 weeks. So far I ONLY use the INFLAMMATION program. And I take COOL CAYENNE daily plus I started R-LIPOIC ACID supplements and Tart Cherry Extract for circulation.

I have many hours and often days now with no pain or pain in the low 1-3 range.
It can be very expensive but I am blessed to live near a LIGHTLOUNGE.LIFE facility in Boulder CO. A single 15 min session is about $90...but if you become a charter member (sign on for 3 month stint at $159/month you can have up to 20 sessions each month making the cost of each session around $8!

It's an ongoing membership that renews afte 3 months - and you can cancel with a 90 day notice. But I won't be cancelling. The modality IS helping and I have the side benefit of having my WHOLE BODY bathed in INFRA RED light - good for the skin and the firming facial skin too. And they're finding new things all the time..even evidence that IRL can trigger regeneration of or repair of damaged nerve endings!

I've only had 18 sessions so far but I feel confident to say that they have made my life a little less painful!

Here's some info about R-LIPOIC ACID (aka R-ALPHA LIPOIC ACID):

R-lipoic acid (RLA) is a powerful antioxidant that may offer a wide range of benefits, particularly for managing conditions related to blood sugar and oxidative stress
. As the biologically active component of alpha-lipoic acid (ALA), RLA is considered more effective than the common synthetic ALA found in most supplements.
Key potential benefits

Diabetes and nerve health: RLA is best known for its ability to manage diabetes-related complications.
Improves blood sugar: It can increase insulin sensitivity and help regulate blood glucose levels.
Treats nerve pain: RLA can help alleviate the pain, tingling, and numbness associated with diabetic peripheral neuropathy by improving nerve blood flow and conduction velocity.
Brain function: RLA is able to cross the blood-brain barrier, offering neuroprotective effects that benefit overall brain health.
Combats oxidative stress: It protects the brain from oxidative stress and can increase levels of beneficial neurotransmitters like dopamine and serotonin.
Neurodegenerative diseases: Studies show it may help slow cognitive decline in patients with Alzheimer's disease and shows promise for other neurological conditions.
Cardiovascular health: RLA may promote heart and blood vessel health.
Improves endothelial function: It supports the function of the blood vessel lining.
Lowers blood lipids: Research indicates that it can help reduce blood glucose and lipid levels.
Skin health: When applied topically, RLA offers multiple benefits for the skin.
Powerful antioxidant: Protects against oxidative damage that causes signs of aging.
Reduces inflammation: Its anti-inflammatory properties can help with skin conditions like rosacea.
Improves texture and appearance: It may improve overall skin texture and reduce the appearance of fine lines and wrinkles.
Weight management: RLA can assist with weight loss, particularly when combined with a healthy diet and exercise.
Increases metabolism: It boosts metabolism and increases insulin sensitivity, which aids in fat metabolism.
Antioxidant and anti-inflammatory: RLA is a powerful antioxidant that combats free radicals and can regenerate other important antioxidants in the body, such as vitamins C and E. It also reduces inflammation throughout the body.
Chelation therapy: RLA can bind to and help remove heavy metals from the body.

Potential side effects
While RLA is generally well-tolerated, some side effects may occur, especially at higher doses. These include:

Stomach upset, including heartburn, nausea, and diarrhea
Dizziness and headaches
Skin rash
Unusual urine smell
Hypoglycemia (low blood sugar), which is especially important for people with diabetes to monitor.

Note: The information provided is for educational purposes only and is not a substitute for professional medical advice. Always consult with a healthcare provider before starting any new supplement regimen.

I've only been taking it for about a week. So far no stomach upset or any of the other side effects.

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Is RLA a natural medicine

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Blueprint products help I'm just not consistent. I have the water with the electrodes and infrared boot, and their supplements given to me by my chiro and yes they do help. I also bought a vibration plate, just gotta be consistent

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What I will not do is waste time going to a neurologist. Try Mama Bear Oasis Cream heard it has helped a lot of people. The NeuroSoothe by Blueprint helps me has nitric oxide in it

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