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I am afraid the pain will never end.
Polymyalgia Rheumatica (PMR) | Last Active: Sep 12, 2025 | Replies (71)Comment receiving replies
Hang in there. I agree with @tweetypie13. Don't rush your taper. I went down 1 mg. every two weeks, until I got to 9 mg. Then, I went down 1 mg. every month. My rheumatologist gives me a guideline for taper, but I listen to my body and adjust accordingly. My taper has been made much easier, as I began Actemra infusions in January. I don't know how, I would have managed without it.
Replies to "Hang in there. I agree with @tweetypie13. Don't rush your taper. I went down 1 mg...."
Ropnrose, I agree with everything you said.
Havana, I will add I had no pain at all until I went under 9mg.
My rheumatologist only offered Kevzara to help the prednisone reduction and I won't take that. (I have diverticulosis, which is not as bad as diverticulitis but I don't want to take any chances.)
Ropnrose, do you have GCA? Someone mentioned that is only given for GCA not for PMR alone. I'd actually be happy to try that as it has been a struggle getting down to 6.5. Not anxious for the next reduction!!!! But want off!!!
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Thank u for sharing your experience and the specifics of your taper. I really appreciate it and willing refer to it