@2024tymloshelp,

Tymlos was prescribed for me beginning in late-2022. By February/March of 2023, I was having the same types of pain you are describing, along with other adverse reactions.

The one that got me the most was the pain across my upper shoulders, chest, back and neck. The pain was so excruciating that I couldn’t take a deep breath - no pain relievers (Tylenol/Advil) would give me even a minute of relief. And, I was never sure if the pains were worse at night or if that was when the world was quiet and I just noticed them more.

I spoke with my rheumatologist who said that he didn’t feel Tymlos was causing my symptoms. So I had appointments/treatments with physical therapy, pain management, a spine specialist, a cardiologist, and two visits to the ER in the middle of the night. The only doc that came up with any reasoning for the pain was the spine specialist who said I had some mild arthritis in my neck. WHAT!? These were not mild anything!

Finally, in July of 2023, after about 9-1/2 months of Tymlos, I convinced my doc that it WAS the med causing the problems and told him I wanted to discontinue it. He agreed. Within days after ceasing the Tymlos, my pains (and other issues) disappeared.

So there you have it! I have learned through this board that we are all different and what works for one of us may not work for others.

With your doc’s blessing, you may want to try stopping Tymlos for a week or two to see if your pains follow suit.

I wish you the absolute best in your search for the culprit. You’ve actually made me feel a little less crazy ;).

Peace to all on this solemn day of remembrance.