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I am afraid the pain will never end.
Polymyalgia Rheumatica (PMR) | Last Active: Sep 12 1:49pm | Replies (71)Comment receiving replies
I started at the end of January on 20g of Prednisone and had gotten myself down to 8 mg by April going down 1 mg/week. The pain was just too bad. I bumped back to 10 mg of Prednisone mid July. Started Kevzara mid August. Also bumped again at this point to 12 mg mid August. The pain was really rough making walking, getting up, moving my arms etc very painful. I am sure u know the drill. Anyway, I have been on 12 mg since mid August, which is when I started Kevzara.
Replies to "I started at the end of January on 20g of Prednisone and had gotten myself down..."
Hang in there. I agree with @tweetypie13. Don't rush your taper. I went down 1 mg. every two weeks, until I got to 9 mg. Then, I went down 1 mg. every month. My rheumatologist gives me a guideline for taper, but I listen to my body and adjust accordingly. My taper has been made much easier, as I began Actemra infusions in January. I don't know how, I would have managed without it.
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Reminder Kevzara can take up to 3 months to work. I would not rush the taper.