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Ray Kemble avatar

Is it PN? Or is it something else?

Neuropathy | Last Active: Sep 12 5:37pm | Replies (9)

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My thanks to both of you for posting this interesting and helpful conversation. I'm getting more wobbly as well. What a great word to describe it. I'm still wearing Brooks Running shoes because they come in women's in my size - most shoes don't and men's shoes are too long in the foot from the heel to the metatarsals and usually too wide. I'll check into the other shoe types you have mentioned, John. Walking any distance is a problem. I'm close to needing a walker or rollator. I have long-Covid as well and have lost a lot of muscle because I simply can't do the reps needed to maintain much muscle. My previous PT and I agreed that I was able to do so little that the PT sessions were not of value. I now have a different PT who specializes in neurological conditions and we're making progress w/in my ability to do the exercises and I'm excited to find some strength slowly returning. Finding this new PT, to whom I was referred by my neurologist, has given me much encouragement - if one door closes, it might just be the opportunity to find a new door opening that leads to something better.
Sending my appreciation to you both for sharing your experiences as we work to make lemonade out of life's lemons.

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Replies to "My thanks to both of you for posting this interesting and helpful conversation. I'm getting more..."

Hi, Joan (@joanland)

I'm so glad you found this topic worthwhile! I've been finding it increasingly perplexing: Is my PN worsening? Or am I too active for my own good? Perhaps I'm asking too much of legs still enervated from last year's prolonged hospitalization + rehab?

For me, too: "Walking any distance is a problem." You say you have a new PT who using a different approach to helping you rebuild leg strength. If you've a moment, I'd welcome knowing what this PT's approach is. My PT knows that rebuilding leg strength is my Goal No. 1. We've been pursuing that goal, but so far without not much measurable effect. Only the other day I had to tell him: "No more sit-to-stands, please." (I've too much arthritis in my knees.)

Here's wishing you well, Joan.
Cheers!
Ray (@ray666)

Walking in water helps a lot.