I made this account to say I have many of the exact symptoms as you. Depersonalization, constant head pressure emanating from the back of the head, medicines being useless, cognitive difficulties, nothing showing up on MRI, memories fading away, etc.

However, I don’t have a couple of your symptoms. I don’t have breathlessness when I talk or achy limbs. My limbs instead feel like they’re distant, not really numb but less sensitive than before.

School used to be so easy for me, but now it’s a living nightmare. It doesn’t help that I also have ADHD. I find myself only able to focus on my head issue. I’ve spiraled into a deep depression and I don’t know how long I can keep going.

The only thing that helps is getting massages. It seems to calm the pressure down a little. There was one time I got a painful massage (note, the massage didn’t include the head, only the spine up to base of skull), woke up the next morning feeling normal for 3 hours. It was beautiful. I didn’t realize how depersonalized this issue made me feel.

The fact that the massage helped and didn’t include the head makes me think it’s a spinal issue, possibly CCI. Another thing to note is that my issue started soon after I got a phone, so my issue could be due to my head hanging low (but remember, correlation does not mean causation). Maybe try getting a deep massage and see if it helps.

I don’t think CSF leak could be it, as most brain MRIs can tell that. Also, All my blood tests turned out normal, so I don’t think it’s a serum-based deficiency.

If you find anything out about your issue, please let me know. I think I’m struggling with the same issue, and even an ounce of relief would be amazing.