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I did see online that hearing problems can be a “rare” side effect of Reclast. But, without actual data, no one can know the frequency or other details. And now, reading here about the terrible various kinds of symptoms others have experienced with Reclast, I’m pretty angry and upset that I didn’t know any of this before using it.

I want to do something about this to make others, especially the doctors who prescribe Reclast, become aware of the dangers so they caution their patients. I view them just as much the innocent victims as we are of the drug company’s masking the dangers of a medication that stays in the body for one year or longer and that can have such devastating and lasting effects.

Does anyone have suggestions?

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Replies to "I did see online that hearing problems can be a “rare” side effect of Reclast. But,..."

susansantafe,

Generally these post market studies are done by institutions (universities, large clinincs) or the drug company. I think it is unlikely they will do any this far out from the drug release. I have been pushing for a case study report for my pseudogout. So far I have not found any takers. I was thinking if enough case studies were reported that might raise some red flags.
I did contact the FDA about the pseudogout. I was uncertain about the tinnitus. But now with you also experiencing ototoxicity, I should report my tinnitus to them. You could do that as well.