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susansantafe,
I am so sorry you have had such bad problems with your hearing. I too had the onset of doubling of my pre existing tinnitus after the Reclast infusion. My tinnitus is so loud that it really disturbs me all day long. It started just after the infusion and is still with me 11 months later. I could not find anything online about Reclast causing tinnitus. I do not think there have been any follow up studies after the release of Reclast for use in the general public. Therefore all the providers depend on the initial studies during the FDA trials for possible side effects from the drug. We are missing all the side effects that would have been unmasked with world wide use of the drug with significantly larger population numbers to study. It is interesting that your audiologist knew about the ototoxicity of Reclast. I also have had unrelenting pseudogout of my right knee for 11 months. It is quite painful and has limited my everyday activities. I will never use Reclast again.

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Replies to "susansantafe, I am so sorry you have had such bad problems with your hearing. I too..."

I did see online that hearing problems can be a “rare” side effect of Reclast. But, without actual data, no one can know the frequency or other details. And now, reading here about the terrible various kinds of symptoms others have experienced with Reclast, I’m pretty angry and upset that I didn’t know any of this before using it.

I want to do something about this to make others, especially the doctors who prescribe Reclast, become aware of the dangers so they caution their patients. I view them just as much the innocent victims as we are of the drug company’s masking the dangers of a medication that stays in the body for one year or longer and that can have such devastating and lasting effects.

Does anyone have suggestions?

thanks for sharing ur experience...I will now try and find the alternate to reclast as it seems to be the most common follow up to teriparatide. I already suffer from tinnitus and twice earlier it had flared up due to infections and is very distressing. but it took 2 years to come down gradually. I pray yours will come down too. I had googled and found that osteoporosis medications help reduce tinnitus !