← Return to Ended up with an emergency Bentall Procedure during open heart surgery

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Profile picture for bpetruccelli @bpetruccelli

what an amazing story. Glad your surgery was successful. I too have a 4.4 cm ascending anurysm and pretty much at the root of my heart. I have only talked with one surgeon at UCLA so far and he said that the only option I have is an open heart surgery . I am currently in Germany and waiting for an appointment to see a specialist here in Stuttgart. I was hoping that there are other options to get this fixed but reading your story I doubt that ... My question for you is : what kind of pain did you experience prior to getting surgery?
I am pretty active and I experience a stinging sensation in my heart on occasion. I also feel that my heart palpitations have worsened in the last year. It's hard not to read into this at times and think that every little thing i feel might be related to "the aneurysm" but I try to be positiv . I hope your are well , best wishes.

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Replies to "what an amazing story. Glad your surgery was successful. I too have a 4.4 cm ascending..."

I had 3 other major procedures done that day. The pain I felt was likely from the complex coronary fistula that went from my right coronary artery to the pulmonary artery and left anterior descending artery to the pulmonary artery. There was also a large aneurysm on my RCA which had to be repaired. The mid-LAD was 100% blocked because of the fistula diverting blood to the pulmonary artery under physical exertion. Collaterals from that complex fistula, ironically, was supplying just enough blood to the heart tissue to keep me alive. I was experiencing sharp intense pains to the left side of my chest just bellow the breast at random times. That's what prompted me to get checked out. The local cardiologists told me my LAD was fine and just watch the aneurysm. I assumed that my pain must have been coming from the aortic root and ascending aorta. However, Mayo found all that stuff between Jul 22 and Aug 6 of 2024 and I was in open heart surgery for over 14 hours on Sep 10 2024. They repaired the RCA, ligated the fistula, did a double bypass on the LAD. Then the root ruptured, aorta split so the repaired all of that in emergent situation. That remaining section was left due to the length of time in surgery and the fact i had to have 17 units of blood products due to losing 3.5L of blood.