I also have a frustrated neurologist. In the last 30 years of seizures, like most, I have been on the medication merry-go-round. I had severe reactions - from being found hiding under my desk at work to drug-level toxicities. And it seemed that a change in any other medication impacted the ability of my seizure medication to treat the seizures. A few years ago, I was diagnosed with depression (I, a math-whiz, couldn't figure out how to balance my checkbook!). That brought on the addition of the antidepressants.
A new, now bestest, friend was a drug-rehab counselor. As I was turning to her for advice, I asked if she knew someone who could help. I didn't want to put this friend in the position of being "nurse" as well. She referred me to a retired psychiatrist. He was a counselor to the counselors, practiced behavioral alignment, and, better yet, he was a neurologist who knew drug effects backwards and forwards.
The result is Lamictal (lamotrigine) and Cymbalta (duloxetine). I don't presume to suggest what works for you, but I was so pleasantly surprised. The bi-weekly counseling sessions allow me to go with the flow. There is more to the story of how well this is working for me, so I will keep you and all others dealing with seizure med issues in my prayers.
Hi @newfiemom
Welcome to the Epilepsy & Seizures group at Connect.
Finding the right medication and dosage for treating epilepsy can indeed be time-consuming. I'm so happy to hear that you've found what works for you! Continuing to persevere after 30 years of seizures certainly shows you are a true fighter.
How long have you been on Lamictal?
Would you mind sharing what type of seizures you experienced and your epilepsy diagnosis?Chris
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