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I know this is unrelated to the above post, but I'm curious if there has been any news about what will happen to the EDS Clinic at Mayo Jacksonville when/now that Dr. Knight leaves his position, and the patients established with and waiting to be seen? I've been very transparent about not having the most positive experience, mostly because of organizational challenges, but they were always kind to me when we were able to overcome the communication and administrative challenges. And as a patient, we were always told we could contact the clinic to return if and when we experienced a significant life change that affected our condition. I'm disappointed Mayo didn't or couldn't invest more in EDS and POTS care.

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Replies to "I know this is unrelated to the above post, but I'm curious if there has been..."

@emo, Mayo Clinic continues to support EDS and POTs care and invests in EDS research. As always, you can reach the Ehlers-Danlos Syndrome care team through your patient account on the the Mayo Clinic Patient Portal or by phone at 904-953-0869.

For any other questions regarding appointment, you can contact Mayo Clinic's central contact offices by location https://mayocl.in/1mtmR63