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Change of diagnosis

Polymyalgia Rheumatica (PMR) | Last Active: Sep 12 3:30pm | Replies (17)

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That's right. He didn't want to risk a flare below 2mg that would require a rise in dose, increasing the cumulative dose of prednisone and losing the progress made. The xrays showed no arthritis but blood rheumatoid factor was elevated. He mentioned Lupus when he saw the rash. He seemed to know what he was on about.

It's a relief in a way that I can stabilise on that low dose for a while and be done with the worry of further reductions. Now I can concentrate on exercise and improving general health.

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Replies to "That's right. He didn't want to risk a flare below 2mg that would require a rise..."

"It's a relief in a way that I can stabilise on that low dose for a while and be done with the worry of further reductions."
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After 12 years of tapering, I had taper fatigue and taper anxiety too. I stayed on 3mg for 6 months without tapering. I liked the 6 month taper reprieve. After 6 months, an endocrinologist said to simply stop taking Prednisone without a taper because my cortisol level was better. Maybe you will be able to do that too.

I hope Plaquenil (Hydroxychloroquine) works.