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Non-Length Dependent Small Fiber Neuropathy
Neuropathy | Last Active: Sep 12 5:17pm | Replies (161)Comment receiving replies
I am a victim of non-linked dependent small fiber neuropathy that was rapid onset. I have been on all of my skin from my head to my toes and every crack and crevice and have so far over six years. I would love to meet and talk to people then also suffer from this terrible invisible disease that can be debilitating pain wise
Replies to "I am a victim of non-linked dependent small fiber neuropathy that was rapid onset. I have..."
Hi there,
I am so sorry you’re dealing with this pain.
Mine started up my legs in 2019 and is now all over my body! My mouth burns inside and out, my head feels like someone is pouring hot water on my brain. My neurologist thinks I have an underlying rheumatism that is not showing up yet. I’ve been on Gabapentin, Lyrica and now I am on Cymbalta. Nothing has helped.
I’m able to function daily by the grace of God!
I pray you find help soon!
You are not alone!🙏🏼
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Welcome @blueyedawn, Having a condition like neuropathy is not something I would wish on anyone. Sorry to hear that yours developed so rapidly. While you wait for other members to respond, I thought you might like to scan through other discussions and comments from members who have mentioned non length dependent neuropathy - https://connect.mayoclinic.org/search/?search=non%20length%20dependent%20neuropathy.
Have the doctors or neurologists been able to determine a cause of the rapid onset? Have you started or tried any treatments?