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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 16 hours ago | Replies (512)

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Profile picture for rgraserb @rgraserb

I was told by my primary that I would be seeing a neurosurgeon not a neurologist and that it wasn’t an emergency but not to wait 6 months down the road. To me that sounds kinda urgent.

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Replies to "I was told by my primary that I would be seeing a neurosurgeon not a neurologist..."

My understanding is that neurologists treat diseases of the brain. Any time one is dealing with tumors, of which a meningioma is one kind of a benign tumor, consult with a neurosurgeon. The recommendation not to wait 6 months to see a neurosurgeon is far better than what my primary care doctor said, which was, basically, "No worries. We find these meningiomas, incidentally, all the time, when scanning patients for other issues." No referral at all. This resulted in me almost being out of the window for treatment either surgically or with radiation which would have resulted in me losing my eyesight in one eye. As it was, two neurosurgeons said they wouldn't even attempt to remove it. The radiation oncologist said, "Whew, you're just going to make our 3 centimeter cut off point." (My meningioma was 2.7 cm)
My daughter insisted I go to UCSF where the neurosurgeon stated most confidently that he had no concerns about removing it. So kudos/praise to your primary care doctor for advising you to see a neurosurgeon.

Go asap.