← Return to Right breast biopsy confirmed ADH, ALH & LCIS what’s next?”

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Profile picture for 1ek @1ek

I had a stage 1 invasive ductal tumor (IDC), plus one DCIS tumor, and one area of ADH. My 2nd surgeon advised that the IDC & DCIS needed to be removed. She said that if I only had the ADH she would recommend monitoring for any changes, but since I needed surgery anyway, the right thing was to remove it at the same time.

Having 3 separate areas removed and preserving the breast isn’t something every surgeon can do. My first surgeon said that my only option was mastectomy … thankfully I had done my research & knew that wasn’t the case, so I got a second opinion.

Keep in mind that each case is different, and the specific size & location of each area affects what can/can’t be done.

I had all 3 areas removed & had oncoplastic surgery to rearrange the rest of the tissue, and a reduction on the other breast so the sizes would match. (I went down about 1/2 a cup size.)

Seems like you’re in a good headspace with this - stay there, and don’t rush into anything you’re not comfortable with.

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Replies to "I had a stage 1 invasive ductal tumor (IDC), plus one DCIS tumor, and one area..."

You have the exact same issue I have - one of each. Your post has helped me tremendously today! NO ONE has even hinted at the type of surgery you had and that is actually what I had dreamed up in my head as to what I would be comfortable with! When I see the doc in a few days, I will bring this up. Thanks so much, and I am very happy for you that you are doing well!

@tek Tell me if I'm asking too much! Where did you get this done? And do you mind telling me the name of your surgeon and oncoplastic surgeon? Depends where they are located but nothing is inconceivable if I'm a good candidate!
Can't believe you had the same three problems in your one boob, just like me. Did the oncoplastic happen immediately after the removal? Or at a later date? And if all at one time, how long were you in surgery?
much gratitude!!! I go see the doctor who can guide me, who I have great respect for, on Tuesday, so I am gathering all the info I need to talk sensibly. Thanks so much!

Is this the paper you were referring to - "Breast-conserving Therapy May be a Treatment Option for Some Patients with Multiple Breast Lesions"?
Also, did you have any radiation?
Thanks again!