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Treatment options: radiation without ADT?
Prostate Cancer | Last Active: Sep 11 6:06am | Replies (66)Comment receiving replies
ADT has been the worst part of my PCa trip-modal treatment by far. I had only 4 months of Orgovyx that completed almost 2 years ago, however, I still deal with 4 major side effects:
1. Hot Flashes: as bad now as they have ever been
2. Visceral/Belly Fat: with a healthy diet and daily exercise, I have 8-10 lbs. of belly fat
3. Strength/Energy: I can't run distances like I could. For example, I completed a 5k while first taking Orgovx. I take more naps now due to fatigue.
4. ED: I have about 60% erections. I tried Cialis and Viagra that improved my situation, but, not enough to keep me taking them permanently.
My many Drs. Urology and RO team seem clueless about why I'm having these issues and certainly offer no effective treatments. I tired T Gel and my Testosterone has recovered to normal levels. I have almost stopped T Gel completely, and am producing normal T levels naturally.
I was completely unprepared for these awful ORGOVYX side effects that seem like they will be lifelong. To make a point to my RO, I told him that having a pot belly and a limp d*** was not something that I hoped for...his response was, 'yeah, I don't get a lot of call for that'.
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I have been on ADT for nine years and recently found something that really makes a difference when I go out to the track twice a day. I can now jog around the track the whole time as long as I take my electrolytes before I go. I’m drinking a liter of electrolytes all at once within 10 or 15 minutes of when I head out. A couple of days that I didn’t drink electrolytes I could jog about halfway around the track and then walk halfway around the track, Not enough energy to keep jogging,.. I drink it just before my 11 o’clock run And it’s still works for my 2 o’clock run.
I’m using a simple WHO electrolyte drink. 1 Liter of water, 2 level tablespoons of sugar And a level Half teaspoon of salt. Really surprised me how much energy it gives me.
It is simple to make, and I can drink it down very quickly within five minutes. If I put it in the refrigerator and make it colder, I cannot drink it down fast. It’s very hard to drink it.. Just use the tapwater right out of the sink and It’s temperature is just right.
I had terrible hot flashes at times with ADT. I found that getting a depo-provera Shot every three months made a major difference. My oncologist is the one that recommended I try it . It actually completely stopped my constant hot flashes when I first had ADT nine years ago. I had the shot about a month ago and it has really reduced the intensity and number of hot flashes. I also use an Embrlabs.com Wave 2 device To manage the hot flashes I get day and night. There is a night mode which sends cold waves through your arm and almost completely stops the nightly hot flashes. You can use the other button to stop or reduce the intensity of the hot flashes you get during the day. They do have a 60 day moneyback guarantee.