← Return to High grade glioma: waiting for remainder of molecular testing

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It looks as though your husband is in the same issue I went through which started in October of 2023. After the radiation and chemo, I was advised of the next steps. The negativity of the Oncologist I was seeing immediately made me get a 2nd opinion. I am so glad I did.
The next treatment was 5 days a month for 6 months of taking the same chemo pills but with the highest dose I could. I was done in July of 2024. The only medication I take now is seizure pills as that is what happened when this was discovered.
Early 2025, my oncologist said there was growth again. She had a wait and see attitude, thank God! My last MRI in early August of this year, the oncologist said just as she suspected, the growth shrunk.
As a side note, due to my original diagnosis which gave me a condition for that of a 5 year old, my oncologist had my blood work sent to the lab again. The 2nd opinion came back with a diagnosis that was different than the first one which I looked up and it pretty much has this as the answer 🤷‍♀️ why I had this happen is unknown.
Sending prayers and hugs that your husband has good results like I have experienced.
Sjt

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Replies to "It looks as though your husband is in the same issue I went through which started..."

Thanks so much for your sharing. Yes, I think my husband has the same issues as you have. And current treatments that presented to us is the same as yours too. He is also taking seizure pills now.

Did you have side effects during radiation and chemo? Anything can help to reduce the side effects?

I am glad to know you are doing well so far, which give me a lot of encouragement. We are also going to try the Clinical Trail during radiation/chomo treatment. We believe that God will lead us through everything.

Thanks again,

Rachel