Hello @simmonsbre, I would like to add my welcome along with @parrot53 and others. I can't imagine how difficult this is to navigate at your young age. I'm hoping you learn more when you see the rheumatologist and GI specialist. Not sure if you've tried something like a symptom checker but Mayo Clinic has one here that might help you figure out questions you can ask your doctors - https://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075.

It sounds like you are good at asking questions of your doctors. One of things that has helped me have a better conversation with my doctors is planning my conversations for upcoming doctor appointments. I found the information on how to do that on the Patient Revolution website - Tools for the Healthcare Visit information: https://www.patientrevolution.org/tools. Mayo Clinic Connect has a great search function and might help you find others with similar symptoms. Just click the search at the top of any page and type a few words or a phrase.