@simmonsbre , wow, it sounds like you are having a hard time. You symptoms should sound familiar, but I’m not sure where I have seen them. It does sound like you have ruled out some things.

How is your type 1 doing? Your a1c sounds amazing. I have type 1 and have for over 20 years. It’s a bear imo. I manage pretty well, but don’t have numbers like you. More in the 6 range.

I recall having some muscle issues years ago myself. Mine included sore, very stiff, weak muscles. A muscle knot in my back and two frozen shoulders at once. Tests were inclusive. I got PT and cortisone injections. Eventually, the symptoms resolved over the course of 2 years. It’s always been a mystery.

I hope you can get some kind of therapy to help you stay active. Also, talk therapy has been very helpful for me. People often don’t realize the enormous responsibility type 1 management is. To me, it’s huge. It’s like a full time job where you work 24/7, no time off and no pay.

Getting online support can be invaluable. Have you ever visited the website TCOYD? It’s run by endocrinologists who have type 1. Lot’s of info there and entertainment. They approach this serious condition with humor and music. You might check it for info on your symptoms. It seems you are a good advocate for your healthcare.

Good luck with everything. Please post how you’re doing with things.

(Did the doctors explain what fat necrosis is? I took a look online.).