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I am afraid the pain will never end.

Polymyalgia Rheumatica (PMR) | Last Active: Sep 12, 2025 | Replies (71)

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Profile picture for cyndiefromnc @cyndiefromnc

Yikes.

Thanks for this information. It does frighten me terribly.

I'm currently down to 7mg with pain. No pain at all until under 10. I can deal with some pain; I just don't want to hurt myself. After reading the info on ths post, I'm worried about adrenal insufficiency and will ask my rheumy for a reference.

Like most PMR people, I'm extremely active. My problem is that everyone thinks I'm fine. I babysit my granddaughter, which is my greatest joy, yet it's exhausting. Lately, I have had some fatigue issues that I haven't had. (I've been on prednisone 6 months.) To say my family and friends don't understand is an understatement! I run/walk 5-7 miles every single day and lift 4 days a week in addition to the babysitting. I'm in a mess here.

This support group really makes me feel like I'm not alone. Thanks for all the comments. I'm awaiting that "peace of mind" era.

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Replies to "Yikes. Thanks for this information. It does frighten me terribly. I'm currently down to 7mg with..."

Hi, I feel exactly as you do. I am also very active and look ok, so especially my family think I am ok . I am fairly new to PMR only July 2025.
I am currently on 12.5 mg of prednisone going down to 10mg next week so wondering if the pain will change. I also have fatigue and need a nap these days.
This has been such a shock as you are not sure what’s around the corner.
Love reading everyone’s journey as I can relate to some.