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Share your test results (if you'd like)

Prostate Cancer | Last Active: 11 hours ago | Replies (122)

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I had the scan. I'm low priority, since it's routine and they don't expect to find anything, so I might not get my results for a week. Honestly, that's fine.

In 2021, I was high priority, and had my results in a few hours (they woke me up in my hospital bed to tell me I had a tumour on my spine that was rapidly paralysing me).

Trust me, you never want to be in the high-priority queue for this stuff.

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Replies to "I had the scan. I'm low priority, since it's routine and they don't expect to find..."

Not quite the results I'd hoped for when they popped yesterday — the radiologist examining the MRI said the area of my spine where I had a tumour in 2021 was "concerning" — but to balance that

1. That's where I had my emergency debulking surgery in 2021, and the spine is likely still rebuilding.

2. Exactly the same weak area showed up in my post-surgery and post-radiation MRIs in 2021 (which the radiologist strangely doesn't mention using for comparison).

3. There was no uptake in that spot for my bone scan in the spring, and the radiologist examining the CT thought it looked like bone remodelling, not cancer.

4. It's extremely unlikely cancer would recur in exactly the same spot on my spine, especially after it's been radiated with 20gy of SBRT.

5. There's no sign of issues anywhere else.

6. My PSA as of today remains undectectable (< 0.01) on the ultrasensitive test, and even rare neuroendocrine cancer generally expresses a *little* PSA (sometimes < 0.1, but I've never seen literature mentioning < 0.01).

7. My other labs are all good, and ALP — a strong indicator of bone distress — is actually declining. ✅

I was pretty upset yesterday when I first read the result, but after a bit of research — and excellent lab results today — I think the radiologist just missed comparing the MRIs from 4 years ago. I'll ask for a review when I meet the oncologist next Wednesday, before we do any more imaging.