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Hello @creondave,
I'm glad that @lisalucier mentioned me in her post to you. My story is somewhat similar to yours. I have had surgery for three neuroendocrine tumors in the duodenal bulb. Several years after the second surgery, a CT scan (for something totally unrelated to the pancreas) revealed pancreatic cysts, known as IPMNs. I have had regular MRIs of the pancreas for over 15 years now. However, unlike your situation, they have not grown or changed in the number of cysts or size.
As @dbamos1945 suggested, it might be wise to seek a second opinion at this juncture. I would suggest a multi-disciplinary health care center, like Mayo Clinic. If you would like to seek help from Mayo Clinic, the contact information for Minnesota, Arizona, and Florida can be found here: http://mayocl.in/1mtmR63.
If for any reason, you cannot be seen at Mayo, I would recommend a university medical school in your area and seek a consultation with a pancreas specialist.
I would enjoy hearing from you again. Will you provide updates on what decisions you make?
Replies to "Hello @creondave, I'm glad that @lisalucier mentioned me in her post to you. My story is..."
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Thank you for the info, and yes I will be getting another scan in the coming weeks. As I discover any meaningful information, I will make an update.
One clarification, while it is new, there have been no significant findings since my first scan in 2022. Since then, I have had four scans, and am lucky to be in the hands of specialists who seem to be well above average in their area of expertise. Overall, I am trying not to think about it until the upcoming scan.