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The Long Quiet

Caregivers: Dementia | Last Active: 3 days ago | Replies (40)

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Hello:
Virtual hug and support to you. I feel you are ahead of me on this journey and I see what is ahead. I think about future placement of my husband in a facility when I can no longer care for him. I imagine the guilt must eat you up inside. However, since you physically can no longer care for him your decision was made for you.
Here's a quote I copied from this website:
Mom,
We love you.
We are only acting out of love.
You have Alzheimer’s, a form of dementia.
Your short term memory is about 5 minutes.
You were not eating, drinking water or taking your medications downstairs.
You fell many times and had to go to the hospital.
We can no longer provide the level of care and attention that you require.
We moved you to the memory floor.
There are professionals and an increased staff here to help.
They will give you better care and attention than we can.
We feel that this was the best way for you to get better.
You can’t remember or understand how much help you actually need.
We know you don’t agree with this decision.
We discussed this with you before you were moved.
It was a very difficult and painful decision.
We are just as upset about this as you are.
Remember this.
You will always be loved.

All the best to you. 💓

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Replies to "Hello: Virtual hug and support to you. I feel you are ahead of me on this..."

Thank you. This is just what I need to hear. It was the fall that precipitated this crisis with my husband and yesterday I had a fall myself. I was trying to do some yard work, stumbled and fell down. I couldn't get up and there was no one around to help me, so I crawled to my car and used the door handle to pull my self up. I'm still shaky today. I, too, am going to need more help, which means spending more for, well, everything. This is a scary prospect, when a month ago I thought I was embarking on a grand adventure. My husband was stable and I had plans to do things to my house. I'm glad the young don't really know or understand what we elders are going through. I wish I'd understood my mother better, but I'm sure she didn't want to burden me, as I don't want to burden my own kids. My daughter is a social worker and works with people like me all the time, and even she doesn't really get it. Sometimes what we need isn't advice--we're not stupid, we know what needs doing--what we need is comfort. In a strange way I'm able to show my husband more affection now that he's in independent living than when he was at home. I can't care for him physically. Others can do that much better than I, but I can be loving. That's what I can do. I honestly believe that keeping a loved one at home when they've gone past the point where you can provide adequate care is a mistake if you can afford something better. But we each know what we need and should listen to our gut. Thank you for your kindness.