The device implanted 2/23 was too large, creating sciatica, and was removed 7/23 for a smaller unit.
After the many settings programmed, of which you read about, something was amiss, and I knew contacting the neurosurgeon would be the best move. He appears to be a pleasant man, and listens to me well, has been an advocate referring me to other doctors for RLS and scoliosis exams. I look forward to our visit on 12/23/24, and to inquire what his thoughts are.
You are indeed fortunate to have found someone who actually listens to you and is willing to reach out to his fellow wizards. When I tried that with my pain doc, he told me that he had plenty of experience and did not have to confer with anyone else. Sound familiar? Merry Christmas and Happy New Year!
RLS is Restless Leg Syndrome, plaguing about 7% of the population, mostly men, however, I am just "lucky" I have it. It is generally genetic, as I believe my mom had it. It is a creepy sensation that your legs move when lying still, and at night. It keeps many people up, robbing them of their sleep. They feel it is a lack of dopamine in the brain, and you cannot settle the legs down when resting. I have tried many medications, and nothing worked. The Mayo sleep specialist doctor said I had PLMD (another acronym) which I knew all along, but the doctors didn't believe in it. Periodic Limb Movement Disorder. A leg or both legs have spastic "jerks" when lying still, unprovoked. She recommended buprenorphine with nalox, and magic: the best sleep I have seen in over 30 years.
If you have scoliosis at that severe of a bend, I don't think so, but consult with a neurosurgeon, one that has performed 100's of the surgeries. I interviewed three doctors, one from Mayo, and took the doctor who is an expert. It was worth a try, and possibly the battery or something occurred to the device, for it not to counter the pain traveling to the brain.
I had a Medtronic SCS implanted in May of this year. The most noticeable difference is at night. My sleep has improved tremendously! If you have lumbar pain the SCS does not relieve it, which I knew going in to it.
I had a Medtronic SCS implanted back in 2018. Along with my meds it dropped my pain from a 7-8 down to about a 2. Then, for some unknown reason, everything seemed to stop working. All my old pain returned. I had all the hardware removed in May of 2024. New pain doc recommended the trial of Boston Scientific's Wave Writer. They were not able to get the trial lead into the "sweet spot" due to scar tissue. Insurance will not approve permanent implant without positive result from trial. Hope this helps.
Can you tell me if you had any problems convincing the doctors that you wanted to remove the device? I have had the nerve HFX stimulator for over a year with very little help and am considering having it removed. Many of the electrical devices will not work while the stimulator is in your body.
Also, how long was the recovery from the device removal?
Can you tell me if you had any problems convincing the doctors that you wanted to remove the device? I have had the nerve HFX stimulator for over a year with very little help and am considering having it removed. Many of the electrical devices will not work while the stimulator is in your body.
Also, how long was the recovery from the device removal?
I had no difficulty in getting approval for the removal. The surgery went very well, and I was back to normal in about a month. I probably might have asked for a trial of another one then instead of waiting.
How well did your trial go?
Sorry you haven’t gotten any relief. This medical stuff can be a real coin toss.
I had no difficulty in getting approval for the removal. The surgery went very well, and I was back to normal in about a month. I probably might have asked for a trial of another one then instead of waiting.
How well did your trial go?
Sorry you haven’t gotten any relief. This medical stuff can be a real coin toss.
Thanks for your response!
I did have a trial with an external device and thought I had gotten some relief, not as much as I had hoped for but enough for me to go ahead with the implant. I have spoken to the nevro consultant several times and have tried different settings. The one I’m currently using acts like a very strong tens unit but it does very little to nothing for the pain/numbness in my feet.
I will be calling the neurosurgeon next week to get the device removed.
Thanks for your response!
I did have a trial with an external device and thought I had gotten some relief, not as much as I had hoped for but enough for me to go ahead with the implant. I have spoken to the nevro consultant several times and have tried different settings. The one I’m currently using acts like a very strong tens unit but it does very little to nothing for the pain/numbness in my feet.
I will be calling the neurosurgeon next week to get the device removed.
Sorry to hear that. Maybe a couple more adjustments will give you some relief. I baffles me why so many have a good trial, then nothing from the permanent implant. Hope yoou find something that helps.
Great! Look into a therapy called Scrambler therapy, developed by Dr. Miller at John’s-Hopkins. It has given a lot of folks relief without invasive surgery. It is not covered by insurance and does not work for everyone, like me. But, if there is something out there that could possibly help me with this pain, I would always wonder, “What if”?
I was referred by my podiatrist in Las Vegas NV Dr Jeremy but the Veteran health care system will not approve but my Medicare supplemental insurance will cover it but i read reviews that some patients it didn’t work, so i went a different route What I use on my feet is Lidocaine Patches 5% at night and it works for my burning and pain relief. Another method my podiatrist tried was a Tense unit with several patches and it helped on my burning but the therapy only lasted if I continued doing the treatment once a week and it was only for 10 week sessions that was approved after it was completed the pain and burning came back in a couple of weeks. So I’ll stick with the Lidocaine Patch that I get from my health care system
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You are indeed fortunate to have found someone who actually listens to you and is willing to reach out to his fellow wizards. When I tried that with my pain doc, he told me that he had plenty of experience and did not have to confer with anyone else. Sound familiar? Merry Christmas and Happy New Year!
RLS is Restless Leg Syndrome, plaguing about 7% of the population, mostly men, however, I am just "lucky" I have it. It is generally genetic, as I believe my mom had it. It is a creepy sensation that your legs move when lying still, and at night. It keeps many people up, robbing them of their sleep. They feel it is a lack of dopamine in the brain, and you cannot settle the legs down when resting. I have tried many medications, and nothing worked. The Mayo sleep specialist doctor said I had PLMD (another acronym) which I knew all along, but the doctors didn't believe in it. Periodic Limb Movement Disorder. A leg or both legs have spastic "jerks" when lying still, unprovoked. She recommended buprenorphine with nalox, and magic: the best sleep I have seen in over 30 years.
If you have scoliosis at that severe of a bend, I don't think so, but consult with a neurosurgeon, one that has performed 100's of the surgeries. I interviewed three doctors, one from Mayo, and took the doctor who is an expert. It was worth a try, and possibly the battery or something occurred to the device, for it not to counter the pain traveling to the brain.
I had a Medtronic SCS implanted in May of this year. The most noticeable difference is at night. My sleep has improved tremendously! If you have lumbar pain the SCS does not relieve it, which I knew going in to it.
Can you tell me if you had any problems convincing the doctors that you wanted to remove the device? I have had the nerve HFX stimulator for over a year with very little help and am considering having it removed. Many of the electrical devices will not work while the stimulator is in your body.
Also, how long was the recovery from the device removal?
I had no difficulty in getting approval for the removal. The surgery went very well, and I was back to normal in about a month. I probably might have asked for a trial of another one then instead of waiting.
How well did your trial go?
Sorry you haven’t gotten any relief. This medical stuff can be a real coin toss.
Thanks for your response!
I did have a trial with an external device and thought I had gotten some relief, not as much as I had hoped for but enough for me to go ahead with the implant. I have spoken to the nevro consultant several times and have tried different settings. The one I’m currently using acts like a very strong tens unit but it does very little to nothing for the pain/numbness in my feet.
I will be calling the neurosurgeon next week to get the device removed.
Sorry to hear that. Maybe a couple more adjustments will give you some relief. I baffles me why so many have a good trial, then nothing from the permanent implant. Hope yoou find something that helps.
Great! Look into a therapy called Scrambler therapy, developed by Dr. Miller at John’s-Hopkins. It has given a lot of folks relief without invasive surgery. It is not covered by insurance and does not work for everyone, like me. But, if there is something out there that could possibly help me with this pain, I would always wonder, “What if”?
I was referred by my podiatrist in Las Vegas NV Dr Jeremy but the Veteran health care system will not approve but my Medicare supplemental insurance will cover it but i read reviews that some patients it didn’t work, so i went a different route What I use on my feet is Lidocaine Patches 5% at night and it works for my burning and pain relief. Another method my podiatrist tried was a Tense unit with several patches and it helped on my burning but the therapy only lasted if I continued doing the treatment once a week and it was only for 10 week sessions that was approved after it was completed the pain and burning came back in a couple of weeks. So I’ll stick with the Lidocaine Patch that I get from my health care system