Pari eRapid/eFlow first impressions

Posted by bronchiectasaurus @bronchiectasaurus, Aug 14 8:41am

Wow. Salty!

I washed and sterilized all the parts last night per instructions, and just had my first session. It is indeed rapid! A big hit of salt (7% solution, 4ml vial) with every breath.

It's not breath-actuated, unlike the AeroEclipseXL I'm accustomed to, so salt mist blew everywhere when I exhaled. I soon manually de-activated it while exhaling, using the power button, and re-activated on inhale. I was near my computer and didn't want salt to get all over my electronics. (Next time I'll try it in my kitchen or living room.) Even with the starts and stops, the session was very fast, under 10 minutes. I will time my next one.

My young cat jumped on me while I was nebbing, disconnecting the cord from the cup. Nothing leaked and I reattached it easily. Clearly I need to find a new location to use this system. It's faster so I don't need to be seated or distract myself with online scrabble, as I do with my usual system.

The concentrated salt made me cough at first, but I got the hang of it by the end. It brought up a lot more mucus than usual! All clear, all good. My usual neb sessions have brought up hardly anything lately, so I found this refreshing.

Afterwards I rinsed the parts and soaked in soapy water per instructions. Question: If I boil after every use, do I have to soak in soapy water first? I skip that step with my AeroEclipse/Aerobika setup and just rinse and boil.
(For anyone curious, this is how I have been nebbing/cleaning for the past several months: https://youtu.be/gRUAIu1nO1w?si=fRSz6DvohTN4SXKw )

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Profile picture for Sue, Volunteer Mentor @sueinmn

@bronchiectasaurus Yes - Salty - Wow! And I just learned to slow the flow by placing my upper lip on the blue flap on the top of the mouthpiece, which keeps from wasting so much saline. And with theopening a little farther back in my mouth, I cough a little less. This is harder to describe, then to do). And I turn the compressor off if I start coughing a lot.

I too am a new user of the Pari eRapid, and I only boil after 2-3 uses. But, this is not my first mesh nebulizer, and trust me when I say the mesh screens are very delicate and can clog easily, so I don't skip the thorough prerinse, detergent soak, or post rinse because the screen (in the head) is pricy to replace.

My routine - use my Symbicort inhaler (used to use Levalbuterol) and wait 15 minutes, neb saline, dismantle nebulizer and rinse, soak (with kitchen timer running), rinse again in filtered water at my tap. On boiling days, I drop the pieces in pot to boil & set the timer for 10 minutes (how long it takes my pot to come to a boil), check the heat and reset timer. When the final timer rings, I turn off the burner and let the water cool.
While I have that going, I do some of my PT or house chores, then start airway clearance when I start the pot. I usually finish about the time the last timer rings. (I reuse my now sterile distilled water several times, leaving it in a covered pot on the stove.

Not nearly as onerous as it sounds, and since the mucus comes up quickly, the whole process is 35 minutes & I have managed some of my PT or tidying up in the meanwhile.

So far 2 weeks in, I am loving it. As it is both smoke and allergy season, it is getting a good workout. As a stable bronchie, with no infection, I usually use saline 2-3 times a week. At this time of year it is daily. I haven't needed to use any of my "other drugs" for an exacerbation yet, so can only say how fast and effective the saline is. But I may ask my pulmo if there is a nebulized version of the Symbicort that may be more effective than the inhaler for this tricky time of year.

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Do you know if this the same Pari eflow that is supplied for use with Arikayce (Lamira nebulizer system)? Being a recent Arikayce drop-out, due to side-effects, I have this unit and would love a system that saves me time and I could also use for travel.

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Profile picture for Sue, Volunteer Mentor @sueinmn

@bronchiectasaurus Yes - Salty - Wow! And I just learned to slow the flow by placing my upper lip on the blue flap on the top of the mouthpiece, which keeps from wasting so much saline. And with theopening a little farther back in my mouth, I cough a little less. This is harder to describe, then to do). And I turn the compressor off if I start coughing a lot.

I too am a new user of the Pari eRapid, and I only boil after 2-3 uses. But, this is not my first mesh nebulizer, and trust me when I say the mesh screens are very delicate and can clog easily, so I don't skip the thorough prerinse, detergent soak, or post rinse because the screen (in the head) is pricy to replace.

My routine - use my Symbicort inhaler (used to use Levalbuterol) and wait 15 minutes, neb saline, dismantle nebulizer and rinse, soak (with kitchen timer running), rinse again in filtered water at my tap. On boiling days, I drop the pieces in pot to boil & set the timer for 10 minutes (how long it takes my pot to come to a boil), check the heat and reset timer. When the final timer rings, I turn off the burner and let the water cool.
While I have that going, I do some of my PT or house chores, then start airway clearance when I start the pot. I usually finish about the time the last timer rings. (I reuse my now sterile distilled water several times, leaving it in a covered pot on the stove.

Not nearly as onerous as it sounds, and since the mucus comes up quickly, the whole process is 35 minutes & I have managed some of my PT or tidying up in the meanwhile.

So far 2 weeks in, I am loving it. As it is both smoke and allergy season, it is getting a good workout. As a stable bronchie, with no infection, I usually use saline 2-3 times a week. At this time of year it is daily. I haven't needed to use any of my "other drugs" for an exacerbation yet, so can only say how fast and effective the saline is. But I may ask my pulmo if there is a nebulized version of the Symbicort that may be more effective than the inhaler for this tricky time of year.

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Hi Sue, could you clarify a point? Are you doing the Pari eRapid plus using the aerobika afterward. How long do you expect the mesh in the eRapid system to last? Finally just to be clear, after how many uses are you sterilizing?

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Profile picture for minute22 @minute22

Do you know if this the same Pari eflow that is supplied for use with Arikayce (Lamira nebulizer system)? Being a recent Arikayce drop-out, due to side-effects, I have this unit and would love a system that saves me time and I could also use for travel.

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The base is the same, but the handset may be different.
I went right to their web site for this info:
"The controller can be used along with the eFlow®rapid nebuliser handset and for medication-specific eFlow® Technology nebuliser handsets such as Tolero®, Zirela® or Altera®. Please take note of the instructions for use for the medication and nebuliser handset in question."
https://www.pari.com/int/products/eflow-rapid-inhalation-system/frequently-asked-questions/
PS A month in, I still love it. Saves time and is quiet. Also easy to recharge - our camper doesn't have 120V when using the solar panels, but I can use USB too.

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Profile picture for irist @irist

Hi Sue, could you clarify a point? Are you doing the Pari eRapid plus using the aerobika afterward. How long do you expect the mesh in the eRapid system to last? Finally just to be clear, after how many uses are you sterilizing?

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Yes to the eRapid for saline.. Sometimes to the Aerobika - many days I don't need it - the saline and a quick walk bring everything up easily for me. I sterilize on Saturday - so after 4-5 uses (I soak and rinse every time.)
Here is what Pari has to say about the handset, "Replace after 3 to 6 months (see also information from the previous question). Please note: If nebulisation time more than doubles, even after using the easycare cleaning aid, the aerosol head needs to be replaced."
https://www.pari.com/int/products/eflow-rapid-inhalation-system/frequently-asked-questions/

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For folks who got the eRapid to nebulize saline, did insurance cover any part of it? If so, how did you need to document medical necessity?

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Profile picture for six5532one @six5532one

For folks who got the eRapid to nebulize saline, did insurance cover any part of it? If so, how did you need to document medical necessity?

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Mine did not. If you have Medicare, it is impossible to get the high end nebulizers prescribed unless they are required for a specific medication. I used HSA money to pay for mine. Now fingers crossed we don't need any dental work for a while.

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Profile picture for minute22 @minute22

Do you know if this the same Pari eflow that is supplied for use with Arikayce (Lamira nebulizer system)? Being a recent Arikayce drop-out, due to side-effects, I have this unit and would love a system that saves me time and I could also use for travel.

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I think you have to get the handset that goes with the eflow and not the Lamira etc.

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Profile picture for irenea8 @irenea8

I think you have to get the handset that goes with the eflow and not the Lamira etc.

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Thanks for the reply! I called Pari this morning and they confirmed that I can’t use the handset that came with the Lamira system with my regular nebs but she didn’t know if I could get the flow nebulizer and use it with the small compressor, which would save quite a bit of money. She’s going to ask someone and get back to me. I’ll report back what I find out.

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That was my conclusion after looking at the photos of the different handsets that are used with it. I cannot imagine that the main part (compressor) would have any difference to it. Yes please let us know what you find out! I have the Altera system which is for Pseudomonas treatments with Cayston. But theoretically, I could use the compressor for saline if I purchase the right handset.

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Profile picture for Sue, Volunteer Mentor @sueinmn

Mine did not. If you have Medicare, it is impossible to get the high end nebulizers prescribed unless they are required for a specific medication. I used HSA money to pay for mine. Now fingers crossed we don't need any dental work for a while.

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Sue... Understand that concern with "fingers crossed we don't need any dental work for a while". I remember the ginger gummies story.
I just finally braved it this morning after putting off going to the dentist due to the mucus production. I have been chewing a small piece of stick gum for 3 years every day due to the relief it gives me of the feeling of a thick lump in my throat and worried I was going to have cavities.
So when I called to make the appointment I was asked 'can you come in today'. So off I went.
I celebrated and treated myself to a Mom and Pop healthy restaurant treat....in celebration of no cavities. I was told by the dental hygienist that all was looking better than the last visit which was over a year and a half ago. Phew, what relief that all was to hear their words.
A bit of a brag....haven't had a cavity since 5th grade and you know my age. 😉
Always nice to hear good news considering all the possible things that can happen to the body....and considering BE.
Barbara

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