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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 9 minutes ago | Replies (513)

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Hi all. I recently had a CT scan on Friday and it showed a calcified meningioma with the measurements. I’m still waiting for the doctor to read the results and call me back, it is now Monday and I’m scared. I don’t know what to do at this point. I’ve been having symptoms for years now and I thought it could be my medication or just me getting older but I’m 49. I just don’t know what to do?

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Replies to "Hi all. I recently had a CT scan on Friday and it showed a calcified meningioma..."

Warmest regards, I was diagnosed with a 2cm calcified meningioma one and a half years ago. It was found when I had a CT scan due to a concussion; as most meningiomas are found incidentally. I followed up with a neurologist and she ordered an MRI with/without contrast. As expected, it had not grown, but a second one was unexpectedly found that was too small to have been seen on an CT. I had a follow up MRI 6 months later. I started having headaches, vision changes, balance issues, etc., and repeated the MRI a month early. It still had not grown, as expected. While discussing the 1st growth and the discovery of the second, we did a review of my medications for other issues that led to making changes with those, in consultation with the prescribers. The changes I made were lowering the dosage of my GLP-1 and going off of Prozac (after being on it for 30 years). WHAT A DIFFERENCE! All of my symptoms that I was relating to the meningiomas, went away. Close your eyes and take a deep breath. The initial shock can be very frightening. Make a long term plan on how to approach living with the meningiomas. Find a provider who you can fully trust. Take someone into your appointments so they can ask questions that you may not have thought about or forgot. They can be a reference point for after your visits if you think of something that you may missed or forgot from the appointments. Basically they can act as an advocate for you and help put a perspective on your status. The Mayo Clinic has some fantastic educational materials that can be sent to you for free. I strongly recommend them. They step you through the journey with the twists and turns that we live with from the moment of the initial shock of the diagnosis. I wish you all the best and believe that there are positive outcomes when dealing with tripping over this pebble in our road of life.

A good surgeon and proper radiation and kemo worked for me. But mine was
cancerous