Hi @wisewoman75. I'm so glad you found my post helpful! You will find a lot of very helpful information on this site, so I'd like to suggest that first you do some searches regarding your specific issues. You can also create your own post - I did that when I was new here and it served me well.
Have you been on any medications for osteoporosis yet? Did you have both DEXA and TBS done? You referred to having severe osteoporosis in your spine - if you're open to sharing that result, it would be helpful.
My suggestion would be to do a broad search for "metabolic bone specialist" as that covers the whole gamut of specialists including endocrinologists, rheumatologists, orthopedists and the like. Unfortunately, most specialists are booked out for months, but it doesn't hurt to try. I got lucky with my last one and had a video visit the day after I called her office and she's great!
If your scores warrant it, you would need a medication that builds bone such as Tymlos, Evenity and Forteo - your dental health is not such a major concern with those as it is with Prolia (as far as I'm aware of). That would then need to be followed up by a medication that holds onto whatever bone growth you gained. All of these medications have many potential side effects, and many potential benefits. I always balance researching potential issues with researching positive responses - that often will be reassuring which I find vital as I highly value diminishing stress!
I hope that's helpful. I tried to be as concise as possible as this can be overwhelming when you're new here. Eventually it begins to come together.
Best wishes to you moving forward!
Warm regards,
Holly
Thank you for the information and encouragement, Holly. I just received this diagnosis last week with a score of 4.1 for my spine I had only a decade scan. I, too, research and weigh the pros and cons when making decisions. I found an endocrinologist who specializes in osteoporosis and thyroid, so I will call her for an appointment. I see my dentist next week and will discuss her experience with osteoporosis patients, if any. The complexity of osteoporosis has been frustrating for me, but I feel better after reading your response. I do believe that I need medication but want to make an informed decision. I have multiple chronic conditions, but there has been nothing to compare with this! I had a severe reaction to only relatively benign medication for autoimmune disorders and have had to manage through life balance. It is not the same as with the osteoporosis. My PCP thinks that it is hereditary, and the specialist I found is in the same health care system as some research facilities. That feels promising.
In the meantime, I am learning how to avoid bending and twisting from the waist and have a PT evaluation with a therapist who works with older adults and osteoporosis patients scheduled for next Monday. Patience. Lynn, patience!
Thank you again,
Lynn