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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 days ago | Replies (6671)

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Profile picture for magrose45 @magrose45

It took a long time for me to finally get to see a neurologist who sent me for a test to confirm what he already suspected. The diagnosis was peripheral neuropathy of which there is no treatment and no cure at the moment all I was offered was as and when I should need it to see my GP who would prescribe me appropriate pain relief. I don’t want to be the bearer of tidings but I hope you can come to terms with this horrible condition and find something that gives you some sort of relief good luck and good hunting Margaret.

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Replies to "It took a long time for me to finally get to see a neurologist who sent..."

Hi, @magrose45, I realize that there is no cure for neuropathy at this time, but there are things one can do to help mitigate the symptoms. I have a pain pump which has not yet given me relief from my neuropathy, but for just one day about three weeks ago after giving myself a bolus(extra boost of medication via remote control), I suddenly had the most amazing experience. All the pain in my feet and all along the backs of both legs just disappeared! It was almost magical. I thought I had turned a corner. First time in two years I had gotten any relief. Then, the next day, all the pain returned. So, my pain doc is going to do a dye test to see if the problem can be identified. I guess what I am trying to say is that you have to be your own, best advocate. Just because some doc says there is nothing else that can be done, that may not be true. Keep searching, my friend. Good luck!