@markymarkfl We seem to have a parallel existence! I looked at the Moonray trial but would have needed to travel to NYC or Boston and the Yale trial I am in made more sense. I also tried Compazine for nausea/loss of appetite but it constipated me and didn't seem to help. I switched to Zyprexa a couple weeks ago and it seems to have helped a bit, and I have no side effects from it and will continue to take it.

When I was being treated with Folfirinox for chemo I battled mucositis at times and discovered XyliMelts and they helped me greatly with keep my mouth moist at night. I have been using them off and on the past few weeks and they help greatly. The homemade mouth rinse you note also helped. I also use Biotene toothpaste and the rinse as needed.

Knock on wood but it seems like my skin rash is fading quite a bit as are my dry mouth issues. I'm hope the reason is because my body is adjusting to the Cetuximab and things will continue to improve but I know that's a bit counter intuitive but maybe I will buck the normal trend?

One other positive thing I forgot to mention is the nodule under the skin on my abdomen (that was biopsied and found to be malignant) seems to be shrinking. I won't know for sure until I have a CT scan on the 19th but manual measurement shows it has gone from 2.5 cm to 1.5 cm.