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shelly9541 avatar

Switching from Topamax to Vimpat

Epilepsy & Seizures | Last Active: Sep 27 6:42am | Replies (24)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @shelly9541
Be welcome to our community at Connect!
I understand how challenging and distressing memory issues can be. My seizures are also mostly partial complex ones, and I've noticed memory decline over the years. I'm 54 now.
My understanding is that the memory decline we experience is related to multiple factors, with medication and dosage being one of them. Other equally important factors include epilepsy type, seizure control, and lifestyle, not to mention age. For women, menopause can also play a role.
I was on Vimpat from 2019-2021 and didn't adapt well to it, having experienced memory issues too. However, I know others who do well on this medication. As my doctor says, everyone is unique, even with the same epilepsy type. I'm on a different AED now but still face some memory challenges. Interestingly, I realize my memory decline began before my epilepsy diagnosis and treatment. I lived many years without knowing I had epilepsy.
Accepting memory decline is difficult, I know firsthand. But there are coping strategies I've learned from my neuropsychologist. I also try to stay active with reading, learning new things, exercising, healthy eating, and good sleep.
I'm sharing here two helpful resources from the Epilepsy Foundation:.
Diagnosing And Treating Memory Problems
https://www.epilepsy.com/complications-risks/thinking-and-memory/diagnosing-memory-problems
Thinking and Memory
https://www.epilepsy.com/complications-risks/thinking-and-memory
You mentioned you have complex partial seizures - do you know your specific epilepsy type? Some types affect memory more than others. Have you had a neuropsychology testing to evaluate your memory changes? If not, it's worth discussing with your doctor.
Chris

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Replies to "Hi @shelly9541 Be welcome to our community at Connect! I understand how challenging and distressing memory..."

Hello,
My epilepsy was diagnosed at 17 years old. The memory issues started when I started taking topamax in my 30s. But it was sooo much better than dilantin, which I was the only one I had used. Ive had the same neurologist for a very long time that retired. I feel this new one isn't listening, and she's just putting me on another drug with all the same side effects. I was just looking to see if anyone had any experience with vimpat. positive or negative. Thank you.