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nancy82415 avatar

Living with Syringomyelia

Spine Health | Last Active: Sep 10, 2025 | Replies (85)

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Profile picture for rob39 @rob39

I have had the syringomyelia pain for 40 years and have had several diagnosis and treatments . It was about 2 years ago after a full spinal MRI that syrinx from t4 to t10 showed up. I am 86 years old and I have CIDP and a progressive heart problem, since I am not as active as I used to be the syrinx pain is not a problem. The CIDP pain can only be described as "cruel" and by far eclipses the syringomyelia. I hope that you can get some answers and relief soon . Best wishes Rob 39.

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Replies to "I have had the syringomyelia pain for 40 years and have had several diagnosis and treatments..."

Thank you.