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Aortic Aneurysms Caused By GCA

Polymyalgia Rheumatica (PMR) | Last Active: Sep 8 5:42pm | Replies (9)

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That is what concerns me. It seems like the common posture of the doctors is to WAIT until something happens rather than periodically take a preventative testing protocol.
I do not like the blank stares

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Replies to "That is what concerns me. It seems like the common posture of the doctors is to..."

I understand your concern. The "wait and see" posture is part of the problem. The other part is what might be done differently to prevent something from occurring.

There is no such thing as "preventative testing." The testing doesn't prevent anything. An aneurysm is often found in the general population and nothing is done. Treating an aneurysm might be more risky than conservative management -- otherwise known as little or no treatment. When there is something that can be done ... the treatment might introduce additional risks.

When the standard of care for GCA is prednisone what else can be done?
Patients are already convinced that many of the preventative measures for Prednisone side effects aren't necessary. For autoimmune conditions, remission comes first and "potential damage" from the condition is more in the realm of "watchful waiting."

I am somewhat happy with the conservative management approach. I have refused recommended tests and recommended corrective action. When they find something ... doctors often aren't sure what to do so I'd rather not know about the problem. I have enough medical problems already. I have a tortuous aorta that showed up on several scans that I choose to ignore. No doctor has ever mentioned my aorta to me because my spine is much worse. My spine gets flagged as "immediate action required."