Mike, by now I hope you have found some peace of mind. What a long journey. As I said piously, Thank you.

It is, and has been, my personal responsibility to share with this group my experiences. I try and provide support to any and all messages to the group that might be helpful. Mind you, in my darkest days, I have had wonderful support around me. Albeit, not my Rheumatologist. Finally, I wish the drs would tell us abt this group. My PCP ow shares it after I told her.

This is so beyond everything that anyone has ever reviewed with me. Thank God for this group and for your willingness to share and help each other.

Yikes.

Thanks for this information. It does frighten me terribly.

I'm currently down to 7mg with pain. No pain at all until under 10. I can deal with some pain; I just don't want to hurt myself. After reading the info on ths post, I'm worried about adrenal insufficiency and will ask my rheumy for a reference.

Like most PMR people, I'm extremely active. My problem is that everyone thinks I'm fine. I babysit my granddaughter, which is my greatest joy, yet it's exhausting. Lately, I have had some fatigue issues that I haven't had. (I've been on prednisone 6 months.) To say my family and friends don't understand is an understatement! I run/walk 5-7 miles every single day and lift 4 days a week in addition to the babysitting. I'm in a mess here.

This support group really makes me feel like I'm not alone. Thanks for all the comments. I'm awaiting that "peace of mind" era.